Nîmes: cross and dictation at the Alzon Institute to raise awareness of the disease among primary school children

This Tuesday at the Alzon Primary School, the primary school pupils are made aware of the “disease” in the presence of the RCN partners MIDI LIBRE – DR

For the 510 pupils of the Alzon primary school, a big day of awareness of the disease with the ELA association this Tuesday, October 14, while the parents held the supplies.

After the ELA Dictation, we headed to the courtyard of the Alzon primary school… At full speed. The awareness course continued with the RCN coach and the Bouillargues handball club (partners of the Institute). « Put on your sneakers and beat the disease », that's kind of the idea. Learning, reading and sport, "everything you need to be healthy" summarized Marie Lachaud, communications manager at the Alzon Institute. For Elsa, teacher and coordinator, the awareness-raising operation is mainly intended to« highlighting that children are sick and that we can support them in our own way… »

"7 children are born with the disease every day"

Leukodystrophy (a subject at the heart of the ELA association's field of action) is a disease that attacks the nervous system, a kind of progressive paralysis that ends up causing the death of the child, it can be triggered at birth or later: “6-7 children are born with this disease every day in France” says the teacher. The aim of the day: that the disease is known, that there is funding for research… she continues.

The ELA ritual to raise awareness of the disease

With the dictation “The two worlds”, the French writer Jean-Baptiste Andrea lends his pen to the ELA Dictation 2024… As per the ELA ritual, each year a writer writes a story about a sick child: « Noah has a dream », and since in the dream the illness does not exist…"It's a beautiful way to think about illness, every year we do an action around living together" Marie Lachaud says, while the parents hold the supplies.