Following the announcement of a ministry delegated to Disability, the France Multiple Sclerosis Foundation is calling for something concrete

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Administrator of the France Multiple Sclerosis Foundation, and also concerned by this pathology, Florian Deygas was the first to question the new government on the absence of a ministry dedicated to disability. Michel Barnier, under pressure, made a U-turn and will announce the name of a delegate minister very soon.

Why did the foundation position itself on the subject of disability ?

Multiple sclerosis is a disease that affects both the health and disability sectors. It is a neurodegenerative disease that is disabling most of the time. Not at first, but it is possible that it becomes disabling. So, patients with multiple sclerosis will have to deal, at some point, with the disability aspect of this disease. That is to say, by going through the MDPH, by fighting for their rights…

Florian Deygas, 35, himself lives with multiple sclerosis. DR.

The government will finally appoint a minister responsible for disability…

The appointment of the minister is clearly the logical continuation of the mobilization of associations. With the Fondation France sclérose en multiples, we were the first to raise the alarm. Then afterwards, celebrities, para-athletes… also mobilized. This is the result of the mobilization inspired by associations. Because we have clearly been forgotten by the government architecture. It was either a political choice or an oversight. And in both cases, it is downright scandalous.

What does this late nomination change??

This appointment restores the rightful place that disabled people deserve within society and within political institutions. We are absolutely not naive, we know very well that this will not necessarily change the face of our rights. But it allows us, in any case, to find a dedicated contact to bring the voice of disabled people to their government colleagues. It allows us to be heard.

What does the foundation hope for from this ministry? ?

To meet the specific needs of people with disabilities and multiple sclerosis, we now expect concrete actions and strong responses to our requests. We still have many demands: whether it be the full and total reimbursement of wheelchairs, access to rights, respite for caregivers… And above all, we expect to be listened to.

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